'fairy insights to excite' I started this blog to share phrases and ideas which help me to feel good whilst living with a 'scleroderma and Raynaud's' diagnosis, to which there is no cure. Attitude is everything - so pick a good one! If you have enjoyed this blog please make a donation to help fund vital research into the rare disease scleroderma. Thank You. #SclerodermaFreeWorld- Imagine That https://www.justgiving.com/fundraising/sclerodermaunit-royalfree
Tuesday, 31 May 2016
Tuesday, 17 May 2016
Co presenting at the Rareconnect Webinar on starting an awareness day for your rare disease
On the 4th May 2016 I had the honour and privilege to co-present at the RareConnect Webinar about starting an awareness day for your rare disease, with the lovely miraculous Timo and the RareConnect techno rare diseases wizard, Rob
Watch the presentation here:
https://www.youtube.com/watch?v=fcyxq9zEhuQ
https://www.youtube.com/watch?v=fcyxq9zEhuQ
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