Rare Disease Day Parliamentary reception hosted by Rare Disease UK, 2nd March 2016

Rare Disease UK Parliamentary reception 2016

Here is the link to my patient perspective of the Parliamentary reception held by, and, for, Rare Disease UK

http://www.raredisease.org.uk/blog-patpersp-rdd16.htm

This has to be one of the biggest highlights of my 19 year patient experience!  

Read more, Click here 

Here is my post for Scleroderma News about the day:

http://sclerodermanews.com/2016/03/06/rarediseaseuk-reception-at-the-house-of-commons-2-3-16/

 

 

 

 

 

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